TY - CONF T1 - Changes are needed to adequately assess health-related quality of life (HRQoL) in informal carers of children with rare progressive life-limiting conditions: key learnings from a collaborative workshop JO - QUALITY OF LIFE RESEARCH PY - 2024/01/01 AU - Carlton J AU - Powell P AU - Peasgood T AU - Chandler F AU - Godfrey J AU - Reuben E ED - VL - 33 SP - S23 EP - S23 Y2 - 2025/04/09 ER -