TY - JOUR T1 - Understanding the health-related quality of life impacts of caring for children and adolescents with rare progressive life-limiting conditions: key challenges and future research priorities JO - Quality of Life Research PY - 2025/03/04 AU - Powell P AU - Carlton J AU - Peasgood T AU - Chandler F AU - Godfrey F AU - Reuben E ED - DO - DOI: 10.1007/s11136-025-03937-8 PB - Springer Y2 - 2025/04/09 ER -