TY - JOUR T1 - Parent Experiences and Preferences When Dysmelia Is Identified During the Prenatal and Perinatal Periods: A Qualitative Study Into Family Nursing Care for Rare Diseases JO - Journal of Family Nursing UR - http://dx.doi.org/10.1177/1074840718772808 PY - 2018/05/16 AU - Johnson J AU - Johnson O AU - Heyhoe J AU - Fielder C AU - Dunning A ED - DO - DOI: 10.1177/1074840718772808 PB - SAGE Publications VL - 24 IS - 2 SP - 271 EP - 293 Y2 - 2025/05/01 ER -